An article from our collaborator Irene Tarragó

We are already in September. COVID has not yet left us, but we must continue to live with it and get used to the fact that it is here to stay. Vaccinations help, but do not eliminate it. We will have to adopt new habits and be very careful with hygiene and distances. But we must live, we must move forward and, just as people with epilepsy have to adjust to certain guidelines, in addition to taking our medication, we are very capable of adapting and looking for alternative ways to carry out our dreams.

I have spent the summer with my family, in a house we have in the Entrepeñas reservoir. My eldest son came with his family at the beginning of August, and they left on September 2, so I have been able to enjoy my granddaughters as much as I wanted. My youngest son, who we haven’t seen since Christmas, has also come. The truth is that my husband and I have enjoyed ourselves, but we have also ended up exhausted. Used to being 2 people, suddenly we are 7 people for a whole month, with their meals, their washing machines… it’s tired. That’s why we have stayed a few days to rest and, also, to be able to tidy up and clean properly. This Sunday we will return to Madrid to start the routine.

“We will have to adopt new habits and be very careful with hygiene and distances”

“Who really enjoys a gathering of friends is the one who is with the five senses, who realizes the things that happen, who laughs and cries for real”

As I told you in my last contribution to the blog, I’m taking a writing course to write my autobiography and I’m really enjoying it. I’m learning many things and remembering facts that I had forgotten. I can’t wait to finish it and get down to writing my autobiography. I want to make it personal, but at the same time, that many people with epilepsy can see themselves reflected in it and I can help them deal with it as I have dealt with it. Obviously, my epilepsy is controlled, but I want to emphasize that if it is controlled it is also because from the beginning, I have done everything the neurologist told me, I have taken my medication and I have not done anything that could put me at risk of having a seizure (at least, intentionally). This is important, because sometimes, especially young people who are diagnosed with epilepsy, are reluctant to, for example, not drink alcohol, because they think they will look weird or that they will not enjoy themselves as much as their friends. Nothing could be further from the truth. Who really enjoys a gathering of friends is the one who is with the five senses, who realizes the things that happen, who laughs and cries for real, not those who suddenly, after ingesting several drinks, make the “moment of exaltation of friendship” and say that they love everyone, losing control of their person and becoming a different one. I have always been the one who did not drink alcohol and I have observed many of these behaviours all my life. It is difficult, nowadays, to convince a young person not to drink alcohol, with how widespread the issue of binge drinking is, but we must do something to reach out, not only to young people with epilepsy but to everyone. Moderate alcohol consumption is fine. Overdoing it is too much and, even if you don’t have epilepsy, you can also damage your brain cells.

Anyway, this is a bit of a moralistic post. But it is so important for people with epilepsy to follow this guideline…
Also the political year has started, so I’m going to have my time very busy.
Best wishes to all.

Swamp of Entrepeñas.

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The next Saturday 21st of November at 4 pm, you will be able to know first hand our product: mjn-SERAS.
mjn-SERAS is a healthcare product that sends a warning signal when the risk of epileptic seizures is high, to the affected person and their trusted contacts.

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    mjn-SERAS is a medical device with CE marking according to the European Directive 93/42/EEC and the Royal Decree RD. 1591/2009.
    Contraindications: Do not use the product if you suffer from an infection in the ear canal or if you suffer from a skin lesion in the vicinity of the product's area of influence.
    Considerations: This medical product works with an APP only on Android phones. The results tested are 96% sensitivity and 94% specificity.

    Save the date

    El próximo sábado 21 de noviembre a las 4 de la tarde, podrás conocer de primera mano nuestro producto: mjn-SERAS.
    mjn-SERAS es un producto sanitario que lanza una señal de aviso cuando el riesgo de crisis de epilepsia es elevado, a la persona afectada y a sus contactos de confianza.


      mjn-SERAS es un producto sanitario con marcado CE conforme a la Directiva Europea 93/42/EEC y el Real Decreto RD. 1591/2009.
      Contraindicaciones: No usar el producto en caso de padecer una infección en el canal auditivo o en caso de padecer una lesión cutánea en las proximidades del área de influencia del producto.
      Consideraciones: Este producto sanitario funciona con una APP solo en teléfonos Android. Los resultados testeados son 96% de sensibilidad y 94% de especificidad.