An article by our collaborator Irene Tarragó

On this occasion I confess that I completely missed the deadline for my blog entry. I hope that, in spite of everything, it can be published on time.

Precisely I am writing on International Epilepsy Day and have put a post on Facebook giving my testimony.

We need to be an army to be listened, to be heard, to be known, to be seen as we are: normal and ordinary people with a disease that makes it impossible for some to have a full life, others have some difficulties and others, like me, belong to the privileged group because we can control the disease with medication and healthy life patterns: our “binges” will be more restrained than those of other mortals, but we can have fun with our friends without drinking alcohol and without going to bed every day at 4 in the morning.

To be listened

To be heard

To be know

To be seen

In addition, thanks to the research that some crazy people do, we have tools and devices that make our lives easier, such as the one managed by mjn-neuro, which helps us to take measures to avoid harming ourselves because it warns us of the arrival of a crisis.

But, unfortunately, there is no coordinated work. The Administration does little for us. There is no social awareness of this disease, which should be done by official bodies with campaigns against stigmatization, explaining what to do in case of witnessing a person with a seizure, explaining what epilepsy is.

Thanks to the Associations that work selflessly, lately, more is being known, but we need help and more coverage.

If this article were read by someone related to the Administration, I would ask them to listen to us and get to know us; to hear first hand how a person with refractory epilepsy or a person with controlled epilepsy lives. Families also have to give their testimony, because it is totally different how a person lives his disease and how his family does. I know from my own experience, because I have epilepsy and my son also had it and I say he had it because, thank God, he was cured. But he had it for about 14 years. And living your epilepsy is not the same as living your son’s epilepsy. It is a totally different experience. And I would prefer a hundred times to have it myself. I suffered a lot more with him.


This is me, do you notice anything strange?

Well, I have epilepsy. And I’m still me.

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Save the date

The next Saturday 21st of November at 4 pm, you will be able to know first hand our product: mjn-SERAS.
mjn-SERAS is a healthcare product that sends a warning signal when the risk of epileptic seizures is high, to the affected person and their trusted contacts.

Sign up now!

    mjn-SERAS is a medical device with CE marking according to the European Directive 93/42/EEC and the Royal Decree RD. 1591/2009.
    Contraindications: Do not use the product if you suffer from an infection in the ear canal or if you suffer from a skin lesion in the vicinity of the product's area of influence.
    Considerations: This medical product works with an APP only on Android phones. The results tested are 96% sensitivity and 94% specificity.

    Save the date

    El próximo sábado 21 de noviembre a las 4 de la tarde, podrás conocer de primera mano nuestro producto: mjn-SERAS.
    mjn-SERAS es un producto sanitario que lanza una señal de aviso cuando el riesgo de crisis de epilepsia es elevado, a la persona afectada y a sus contactos de confianza.


      mjn-SERAS es un producto sanitario con marcado CE conforme a la Directiva Europea 93/42/EEC y el Real Decreto RD. 1591/2009.
      Contraindicaciones: No usar el producto en caso de padecer una infección en el canal auditivo o en caso de padecer una lesión cutánea en las proximidades del área de influencia del producto.
      Consideraciones: Este producto sanitario funciona con una APP solo en teléfonos Android. Los resultados testeados son 96% de sensibilidad y 94% de especificidad.