An article by our collaborator Irene Tarragó

As I told you in my April blog entry, this Easter we have spent with our family in Calanda. We have been cold, we have been wet, we have made excursions, we have met a lot of people, we have gone out in processions playing the drum, we have been in the “rompida de la hora” (breaking of the hour), feeling the din of hundreds of drums playing at the same time… the truth is that we have enjoyed a lot and everything has gone with great harmony.

As I often say, I am a privileged person, because my disease does not prevent me from enjoying this activity that, surely other people with epilepsy could not bear. Because epilepsy is a disease that manifests itself in many ways, not only with seizures, but that also has different origins, that can accompany other diseases, that the drugs that can control the seizures can be good for some people and bad for others. Therefore, we cannot expect our epilepsy to behave like that of another person who has also been diagnosed with epilepsy. Our community of patients should only and exclusively serve to support us, to give us sensible advice, to teach us how to react to a seizure, to spread the diversity of manifestations of this disease throughout the world and to encourage society to get to know us and to lose its fear of epilepsy.

I’m a privileged person, because my disease does not prevent me from enjoying this activity that, surely other people with epilepsy could not bear

In this month of May, the National Epilepsy Day is celebrated in Spain. It is the next day 24. From all associations, organizations and companies that focus on epilepsy is a good month to dedicate to this disease some outreach event and to make visible this disease. Since 6 years ago, the National Association of People with Epilepsy –ANPE– organizes in this month several events and asks public and private organizations to illuminate their buildings in orange on that day, because orange is the color of epilepsy in Spain. This year, I myself will make an informative program with an interview with an Argentinian activist who runs a blog on Twitter about epilepsy and with whom I contacted many years ago. She also has epilepsy and what she does has a lot of merit. The name she uses on Twitter is @espac_epilepsia, on Instagram Espacio de Epilepsia and on YouTube Espacio Epilepsia.

I will continue to tell you more.

ANPE – National Epilepsy Day
Congress of Representatives – Madrid
TOSSAL DE LA CALA – BENIDORM
PALACIO DE SAN TELMO – SEVILLA

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The next Saturday 21st of November at 4 pm, you will be able to know first hand our product: mjn-SERAS.
mjn-SERAS is a healthcare product that sends a warning signal when the risk of epileptic seizures is high, to the affected person and their trusted contacts.

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    mjn-SERAS is a medical device with CE marking according to the European Directive 93/42/EEC and the Royal Decree RD. 1591/2009.
    Contraindications: Do not use the product if you suffer from an infection in the ear canal or if you suffer from a skin lesion in the vicinity of the product's area of influence.
    Considerations: This medical product works with an APP only on Android phones. The results tested are 96% sensitivity and 94% specificity.
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    Save the date

    El próximo sábado 21 de noviembre a las 4 de la tarde, podrás conocer de primera mano nuestro producto: mjn-SERAS.
    mjn-SERAS es un producto sanitario que lanza una señal de aviso cuando el riesgo de crisis de epilepsia es elevado, a la persona afectada y a sus contactos de confianza.

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      mjn-SERAS es un producto sanitario con marcado CE conforme a la Directiva Europea 93/42/EEC y el Real Decreto RD. 1591/2009.
      Contraindicaciones: No usar el producto en caso de padecer una infección en el canal auditivo o en caso de padecer una lesión cutánea en las proximidades del área de influencia del producto.
      Consideraciones: Este producto sanitario funciona con una APP solo en teléfonos Android. Los resultados testeados son 96% de sensibilidad y 94% de especificidad.
      CPSP20103CAT.