An article by our collaborator Carme
I have had epilepsy since I was a child, they have never managed to control it, I have seizures that leave me very confused and make me lose myself, I can have 20 a month. But I have had a very normal life, I studied away from my parents’ house since I was 18 years old. I have gone to the beach to swim, to dive, I have always gone by bike and I have even done some climbing and skiing.
My illness hasn’t conditioned my life. I have never been afraid. I have had a family that has kept a close eye on me without turning their fear on me. Prudence is enough, I have been out a lot with my friends at night, but I have never consumed alcohol or stopped taking my medicines. When my heart races, it is very likely that I have a seizure, so I have done sports that did not involve running: judo, archery…
In the world of work it has been difficult, having so many seizures, many people thought they were faked to get me out of work. Private companies are interested in people with disabilities, but when disabilities appear…
My illness hasn’t conditioned my life. I have never been afraid.
And I keep fighting, I write down all my crises, I try new medications and even some operations. Delighted to participate in the MJN project.
