Un artículo de nuestra colaboradora Irene Tarragó

“I think the earpiece is very useful, discreet, comfortable to carry, easy to use, and can prevent many falls, which can be very dangerous.”

Hi, my name is Mar, I am 21 years old and I have been suffering from epilepsy for 18 years. The cause of my illness is unknown, which is why it is called idiopathic. My seizures during the day consist of me being paralyzed, losing consciousness, and falling forward; I also have night seizures, but I don’t remember them.

I had my first seizure at the age of 2, which is when I was diagnosed with epilepsy, from this crisis they started giving me all kinds of drugs to control my epilepsy, but they didn’t work because I am drug resistant. I had to go to the hospital a lot and that was the reason I repeated first course in primary school. In fifth course of primary school, I had surgery on my head in order to get rid of my epilepsy for good, but they couldn’t get it out completely because the epilepsy affected part was in the part of the brain that controls speech, for this reason still I have epilepsy. Then I started high school and in 2013 I discovered an association that was and still is very important in my life called Mar De Somnis.

“Mar De Somnis helped me understand and accept my illness, and I found my second family on his team.”

In the first activities I participated I did not feel very comfortable, I did not know many people and it was difficult for me to relate, but from the first camp in 2014 this changed radically, it was the first time I realized that there were other boys and girls who were also going through the same thing as me. I made great friends, friends who are like my family and who fortunately are still by my side whenever I need them. Mar De Somnis helped me understand and accept my illness, and I found my second family on his team.

One of the biggest problems for me from my illness is that seizures come without warning and this can be dangerous depending on the activity you are doing at the time of the seizure. In fact, in falls caused by seizures I have broken my nose, my ankle, my arm…   For this reason, I participated in the test of mjn-SERAS. Is a device capable of predicting seizures by alerting the patient via Bluetooth through the mobile phone. That be able to take the necessary safety measures and avoid risks. I think the earpiece is very useful, discreet, comfortable to carry, easy to use, and can prevent many falls, which can be very dangerous.

“I hope to be able to find work soon and be able to become independent.”

Another of the problems of the disease is the lack of information that people have and the rejection of society. I have suffered this especially in school, primary and secondary, which my classmates did not understand that it was different. That was more than enough reason to marginalize me. I’m better off right now even though I’m still in seizures, I’ve taken out an intermediate degree in administrative management which I’m very proud of because I’ve had to put in a lot of effort. I hope to be able to find work soon and be able to become independent.

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Save the date

The next Saturday 21st of November at 4 pm, you will be able to know first hand our product: mjn-SERAS.
mjn-SERAS is a healthcare product that sends a warning signal when the risk of epileptic seizures is high, to the affected person and their trusted contacts.

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    mjn-SERAS is a medical device with CE marking according to the European Directive 93/42/EEC and the Royal Decree RD. 1591/2009.
    Contraindications: Do not use the product if you suffer from an infection in the ear canal or if you suffer from a skin lesion in the vicinity of the product's area of influence.
    Considerations: This medical product works with an APP only on Android phones. The results tested are 96% sensitivity and 94% specificity.

    Save the date

    El próximo sábado 21 de noviembre a las 4 de la tarde, podrás conocer de primera mano nuestro producto: mjn-SERAS.
    mjn-SERAS es un producto sanitario que lanza una señal de aviso cuando el riesgo de crisis de epilepsia es elevado, a la persona afectada y a sus contactos de confianza.


      mjn-SERAS es un producto sanitario con marcado CE conforme a la Directiva Europea 93/42/EEC y el Real Decreto RD. 1591/2009.
      Contraindicaciones: No usar el producto en caso de padecer una infección en el canal auditivo o en caso de padecer una lesión cutánea en las proximidades del área de influencia del producto.
      Consideraciones: Este producto sanitario funciona con una APP solo en teléfonos Android. Los resultados testeados son 96% de sensibilidad y 94% de especificidad.